A parent’s worst nightmare come true. The most difficult decision has to be made. But why?
Johanne and Michael Wagner, a Canadian couple from Ontario had adopted twin girls from Vitenam in 2012. They knew when they adopted the girls that they both had a life-threatening condition and would need liver transplants.
â€œWe were willing to go through with the adoption, thinking at least we could give them the love of the family and be able to hold their hand until the very end,â€ Johanne told the CBC, a Canadian news organization.
The twins, Binh and Phuoc, suffer from Alagille syndrome. This syndrome stops the liver from properly working and doesn’t allow the liver to drain the bile, allowing it to build up. This build up destroys the liver.
Because of the severity of the condition, drugs and other medical procedures are no longer working for the twins. They can only be saved with liver transplants at this point.
Michael had been tested to see if he matched his now 3-year-old twins. They had great news, he matched! But, then came the crushing blow, he could only donate to one twin.
Now the Wagnors face a gut-wrenching decision, which twin gets the transplant? How does a parent make that decision?
â€œWe told them we didnâ€™t want to be burdened with the decision-making,â€ Joanne told The Globe and Mail.
The doctors at Toronto General Hospital will make the final decision on which twin will receive the transplant to alleviate the parents of the difficult choice.
The parents are hoping that a donor match will come along for the other twin so that both girls can be saved. A live donation is actually preferred over a deceased donor. The surgery will been done in the next couple of weeks.
Hope and prayers go out to the Wagnor family during this difficult time.
Would you donate if you matched?